March 27th in Review ......

Hellooooooooo Today!  

Jax won't sit still. Or maybe I'm just super shaky.

Then there is THIS.....  day 102.  Feels like this has been going on FOREVER ....

Which is WAY better than this!!!  Holy COW what a difference!!!

Another super simple on the fly bag - just feeling so crappy today :(   Feeling so out of sorts and just ... almost ....  I donno how to explain it.  Almost like I'm out of body.  Spacey I guess.

Soooooooooo tired of being sick allllllll the time.  :/

Kaedyn sleeping ---- took him 15 minutes into Triple G tonight.

Jax my love........

Fangirl TIME!!!!!!

 Episodes watched during my marathon today .......

Can I just have this ring?  Please?????  

Okay - I have to say I'm about half way through (more than) season 4 and I'm really confused as to why I don't remember any of these episodes!!   I am really confused.  I know I watched X-files religiously at that time.  But I seriously do not remember any of these episodes????  The only one I remember was Never Again from last night.  And I knew the title of it and everything the second I saw it.  So ...... Odd.   Was I abducted and my memory probed?  Hummmmmm ....

March 26th in Review....

I woke up and ......... this was in my bed.  Ignore my homeschool files that are crazy and disorganized right now.   He slept forever and even Nathan came in and was like "wake up!" ... lol....

I also got a message saying Noah was being Spotlighted on a couple of Trisomy sites!!!  How cool!  The only thing is he doesn't have Trisomy 16.  He has MOSAIC Trisomy 16.  It's a huge difference.  Even though both are considered "incompatible with life" if he were FULL Trisomy 16 (which his placenta was 100%) ...  he wouldn't be alive.  There are no known full trisomy 16 people alive.  Most of them don't make it through the first trimester.

My fan broke.  I took it apart to clean it out and try to fix it but.......
                                 ...... it's dead Jim.  

Got some (free) Clothes for the baby today!!  AWESOME!  One even had a little elephant on it.

Kaed was home because of him sleeping in and he woke up not feeling well but he decided to play Pokemon in my vicinity  .....

I have also been talking to a new G-Tube Mom, she's having problems with her little girls site.  She's in the same panic mode I was in for the first several months.  And that's what it is.  It's so unfirmilur and unknown and you question EVERYTHING.  So I was showing her our process and what Nate's site looks like on a daily basis.

Tonight's feed bag art.  I wanted to do something simple because it was already so late.

Bedtime.  This seems to be how it goes now.  Jax and Kaedyn.

I got some cuddle time with Mr. Marshmellow too.....

On my X-files Marathon front...  These are the episodes I watched today.

March 25th in Review.... Clairah Invaaasion!!!

So .... Clairah got dropped off this morning, over an hour late ...  (oye) ...  which meant we missed an appointment because they were late.  It would have been easier to just go get her in the morning like planned.

Anyway - she got here, and Shi had Jaxson out.... and of course he gets SUPER excited when he sees Clairah and of course he JUMPS on her and causes all this chaos and her to get upset and yeah....  but she forgave him, real quick.

Someone found Nonna's chapstick.  Ummm... yep.   The chin, it's all about the chin!

Pappy made some mac noodles with some beef stew for lunch.  Shi didn't think she'd like it much but man oh man she ate - it - up....

She got to play tug of war with Jax.  She was laughing and laughing and laughing.....

She played with her ginormous My Little Pony.

And then she got tired.   So she did this funny thing where she laid across my legs.  I was laying on my side and my legs were on top of each other, and she was laying across them.

Then she adjusted herself (we were watching Bubble Guppies) and she used me as a chair.  She really liked Bubble Guppies.

And then Nonna became a bed!  LOL.... she cuddled into the crook of my knees.

And in that moment, I realized my  bed was a big old jigsaw puzzle.  Shi was laying next to Clairah, Claire was laying on me.  Jax was laying under Clairah's feet.  DB was sleeping on his side.  The bed hog.  Oh yeah, and there is me too.

But I got lovin from my sweet Claire-Bear.  She's sooooo tired.  Didn't get a nap.

Jax thinks DB's stuffed wolf is his new BFF

Kaedyn has become Clairah's buddy though!!  They were playing and playing....  she was laughing and laughing with him.

And in the upper left corner, you can see that Noah is playing with her which is a huge SHOCKER!!!  Noah doesn't necessarily "like" Claire being around because she (used to) cry a lot when ever Shila was out of her sight, but she's FINALLY getting used to things and YAY she doesn't cry anymore - well she does, but not like before.   So Noah actually played with her today - for a long time actually - and they had FUN.

DB says "Hey I am photo bombing you!"  Are you?  Or am I taking pictures of you and me?

I saw this on FB and thought this is how I feel about him.

So it's day 100 of the spots.  DAY 100!!!!  I mean seriously.  100!!!   BUT the good news is this.... I can see it *starting* to go away.  It's not so red, they aren't so angry, they are flatter.....  but oye.  Just. Oye.  I am also not so self conscious about them.  Which is amazeballs.  I went outside the other day in shorts - and my all spotted glory, to take Jax out to potty and I didn't realize that I was in my spotted glory until I was out there for awhile.   It was kinda nice.

This is tonight's Feed Bag Art....

And yeah, this is STILL going on ........ morning and night temps.

March 24th in Review..... It's a GIRL!!!!

Today was filled with ALL KINDS of AWESOME NEWS!!!

Before we get to that, lets take a look at the loooooovely Washington Weather....

LOVE IT!!!!

Me, waking up this morning.  Oye.  I hate that mornings are the WORST for me.  I am usually so tired when I wake up, like I can't function tired.  Sometimes I just have no choice but to go back to sleep but I really try to fight it - and make myself have "normal hours" because sleeping a lot only makes me want to sleep more.  I have my awesome rare cat :)

Had to put together my pills today ...... 18 pills a day. 11 types of pills. 3 daytime. 15 nightime. I have an occasional pain killer, that makes 12 types of meds. 2 creams for my skin. And waiting for approval ...Humira (2 injections a month) for the Psoriasis, and my insulin ...long acting one shot a day. 15 right now, total. Plus Light Therapy. ... You know you are sick when you take a pharmacy.  #sickofsick #psoriasis #psoriasissucks #CFS #ChronicFatigueSyndrome #fibro #Fibromyalgia #autoimmunedisorder #myimmunesystemsucks #MyalgicEncephalopathy #dearimmunesystemWORK

First bit of AWESOMESAUCE NEWS!!!!!!!!

From what I've read, they are coming back for 2 seasons (so far) with short 6 to 10 episodes (6 for the first season) ....

HELL YEAH I'M READY!!!!

Jaxson today.  He's becoming my new BFF ... LOL.... he likes to lay with me ....

I got dressed ..... got the BIG HUGE 20 WEEK ULTRASOUND today .....

Jaxson ... love him.  Oye....

So I took the kids the the 20 week ultrasound.  So honored I got to be there.  Shila likes me there for her appointments and such, but she's a handful.  LOL....

We got a HUGE kick out of the fact that her belly exposed EXACTLY where the baby was.

Everything was AWESOME.  Heartbeat was 153 BPM.  Baby is measuring about 10 oz.  Annnnd....

IT's A GIRL!!!!!!!!!!!!!

I am sooooooo excited!!  I tend to "guess" wrong ... my gut feeling is usually the OPPOSITE of what it is.  So I said BOY in hopes it would be a girl!  WOOT!!!

Daddy shed a tear and Shila and I were high-fiving in the ultrasound room.

So when we got home, I gave the boys all the choice to pick a red or blue chip.  Red for GIRL and Blue for BOY ... and they all stuck with their original choices.  All the boys but Nathan picked BOY... Nathan was the ONLY one that picked GIRL.

 So I made this for Kale and Shila to announce it on Facebook.   Her name is Elly because her theme is Elephants (was going to be elephants boy or girl) .... but they liked Elly for a girl Elly the Elephant.  Anyway .... "Anne" is after his mom, who died.  Her middle name was Ann.  And then my middle name Rae for her middle name.  And I am TRULY honored they decided to do that.  It means a ton to  me.  I kept telling them they didn't have to do that.  So I'm really honored they did.

Kale wanted me to post it and tag him and Shi in it.  Then he shared it on his page too.

So - let me tell you a little story.  So one of Kale's MANY step-mom's likes to comment on his stuff  (this was on the announcement where he shared it from my page) - usually ONLY about the baby.  We'll call her "C" ....  so "C" kinda came out of the woodwork once we announced that Shila was pregnant.  And she's acting like she's the MAIN Grandma - like she's it.  So it really pisses me off because she like came out of the woodwork when Shila announced she was pregnant and before that - not so much.   I get she's excited.  But here is what pisses me off.  If she loves Kale and Shila so much, if she's such a good "mother" ... where the hell was she when Kale and Shila were on the streets, HOMELESS, for months????   Where was she when Kale called her up and said "Shila could be pregnant" while they were on the streets and she had a miscarriage?   Where???  I have said it before, and I will say it again ....  I found out they were on the streets, and there was a plan to get them in five minutes.  I didn't even know Shila and she was welcome too because I trust Kale wouldn't put my family in harms way because he knows my kids and their struggles.   Yeah, sure, it hasn't always been easy but I think being here has done them a lot of good.  Neither of them had good families, and they don't know what a solid family is.  They have a relative here or there that truly want them to succeed but most of the family (for both of them) do nothing but tear them down.  And it angers me SO MUCH.

So when I saw this comment, I just kinda blew it.   Started on Kale about "Where the F was SHE?" feelings and he's all nodding "I know Mom I know."   Maybe I'm being selfish.  Maybe I am being possessive .... but they are MINE now.  I'm their Mom.

It's the "Yay I get to spoil a little girl this grandma is a very happy grandma Love you guys congrats" comment.

It just got SO under my skin.  I begged Kale to let me say something.  Begged him.  He's like "No Mom, don't say anything mean cuz then I have to deal with the aftermath."

True.  True.

But I can kill her with kindness right????

Bam!!!  In your FACE.  I'm really not a mean person but when someone is doing that crap I'm just grrrrrrrrrrrrrrr ... 

In the meantime, she posts this - tagging Kale and Shi with MY GRAPHIC and one she apparently put together herself.  The whole 8/15 threw us all off because the baby's due date is 8-11-15 ....  then I realized, it was month and year.

And then in the comments she says "I had made 2 one for a boy and one for a girl lol" and I just got mad.  At that time, without her saying which one she had "made" .... I felt as if she were trying to take credit for the graphic I made.  And it's not the only one she's saved and posted.  She's done it with the other ultrasound pictures too and stuff.  It would just be nice if she said "Hey I'm really excited, do you mind if I save your graphic and share it???"

Course....  I never ask.

This is the graphic she "made" ....

* shivers * .... whatever.  Like Elsa said, LET IT GO ... right?

However, Kale saw the comment I left about the name and being there when she's born and he comes to my room and he goes "Really?"   I was all "I wasn't MEAN!!!!  There wasn't one MEAN word Kale!!"   He shakes his head and laughs.   "I give it 24 hours before I get a message from her complaining that I didn't use her name."  UPDATE:  And sure enough she did.  He woke up Wednesday morning to a message from her "Why are you using this girls name and not mine?"  She was even pissed he was using his bio-Mom's name!!  I mean PLEASE.  Again, where the hell was she when they were on the streets for months.  And anyone saying "I couldn't afford to take them in".... I couldn't really either, but I still did.

This is the crib set they want.

So it was a looooooong exciting day.  And I ended it with some cuddles from the cat.