I am spending the early hours this morning watching Dead Files Revisted and working on finishing up by blogs I'm behind on. YAY! (6 counting today's which I haven't started yet) .... I am absolutely determined to get caught up because I just want to be CAUGHT UP ....
I'm super tired this morning, but I am going to GET THIS DONE. Or try my damndest to .... I'm going to stay awake all day, no matter the pain I'm in and how much it wears me out, and I'm going to sleep tonight. Best laid plans, I know....
Today was deep cleaning day though - so maybe the blogs won't get done. Kaedyn and Nathan's mattresses need to get up-ended and cleaned out the underside of them, vacuumed, cleaned, everything... Luckily with my back pain, I got to dictate...
Guess what!?!? If you guessed it's raining again! Ding ding ding, you win ... well nothing but pride.
Me (from behind my head) working on the computer - watching Dead Files Revisited, watching Cal watch Dead Files Revisited...
DB asked if I wanted to go with to get Nathan. I said sure, figured I would get out of the house, so I hobbled downstairs. Got in the van with Jaxson.... we tried to take Ely Mae but she didn't want to go ... Mom was home, otherwise I think she would have.
We picked up Nathan, who had swimming today, and Bubba from school.. I hobbled into the school to get them, and into the Inclusion Room to see if they knew anything about Nathan getting a name list for his Valentine's ... long story short, Nathan's teacher ended up bringing me down the list (bad back, I can't go up stairs anymore than I have to.) while Nathan and Kaedyn ran upstairs to go get the list from her. Oopsies! LOL...
But I got his list! Plan is to do Valentine's tomorrow - woohooo great fun! Plus going to make Valentine's boxes here at home again - just for fun....
The boys got a treat though, today - we had found these fun suckers that rotate that we thought they might like... got them yesterday and made them wait until today to get them. Well, actually tortured Kaedyn with it, Nathan didn't know until it was handed to him.
Kaedyn played with his Shopkins today, he had them all lined up like this......
And OMG ..... DB made homemade (from scratch) potato salad tonight and it was soooooooo sooooooooooooo goooooooood.
Master Chef Juniors tonight, Bubba and I were going to - during the preview of the season, I had to stop and back up because I - at first - really thought that was Will Ferrell but I was cracking up laughing. OMG. I can't wait. Swedish Chef! Hell Yes!!!!!! (I know, that's his OTHER show)
(Posted this tonight on FB)
Nathan isn't doing well at all right now, and we're not sure what to do at this point. I'm going to run down some stuff so that maybe you can possibly help me.
My son got a G-Tube (Mic-Key button) at the age of 7... he was a little old to be placed with one, but that was mostly my fault since I had been fighting against it for years. Nathan can eat by mouth, and I worked so hard to get him off the NG tube and to 1: bottle feed and then 2: solid feed, but he has never been able to gain weight and has always been sick.
We finally decided to get the G-Tube in hopes to mainly solve his lack of immune system and hope to maybe get him gaining weight finally.
His tube was placed June 24, 2014 (I remember well because June 25th is my birthday and I got to spend it in the hospital. The following year I got to spend Mother's Day in there too while he was in the PICU and dying from severe sepsis, luckily we pulled through.)
So Nathan eats and drinks by mouth, like I have said, and at night he gets a supplement of 3 boxes of 1.5 boost boxes along with miralax, and he gets his meds via his G-Tube also.
Nathan has never not tolerated his feeds - there are nights where he has a hard time and wakes up, throwing up, and we stop the feeds and focus on listening to him and what he tells us and restart when he's ready (usually the next night).
For the last month or so, we've been dealing with a lot of tummy troubles. Crying from stomach aches. We know that if his tummy is already upset, he won't tolerate the feed and throwing up is worse for him than missing a feed, so we usually listen to him and don't give him feeds if his stomach is upset.
However, this has been going on for a long time now. We have lowered his rate of feed, we have treated him for possibly being backed up and/or constipated, gave him a suppository last week but that wasn't the case (this was his pediatrician's idea) ... He was not backed up that much if he was at all, because it didn't seem like it.
So he tolerated two feeds last weekend (suppository was the Thursday before during the day.) ... he's been complaining about his belly hurting again, almost every night. I don't know what to think, but I really don't think it's his bowels. He is pooping every day. He is eating and drinking orally - but probably not as much. He seems to pick at his food a lot more. Drinking doesn't seem to be a problem.
Every night he starts complaining about his belly hurting, we manage to get his meds in without any throwing up. But when we try for the feeds, he wakes up from a sleep and throws up - almost - every- time.
I'm trying to decide what my next step should be. If I should just try to decrease it more, take him into this regular pediatrician or to contact the children's hospital and someone on his team there.
I saw this tonight and it just drove me bananas .... not even kidding. And then I realized that it was - indeed - on a fake news site. But still....
Their opinion on how the cartoon turns your child Autistic.... my additions and recommendations in blue.
Don't have a toddler - period, or Teenager.... OR HUSBAND .... or be around people in general as these are all very common things. LOLOLOL
Kinda made me laugh. Kinda... after I was done being generally irritated ....
This came up in my "Memories" .... It's a little story I wrote about Noah just after his 13th birthday.
Once upon a time, there was a wizard who cast a spell on a young Princess. She had one little Prince and wished for another child to fill her womb, but instead, as soon as it started the process of being filled, her body would wash it again. Over and over again.... and then it didn't. But the Princess didn't know that this wizard has cast a spell on her that would cause her baby to die.
The Princess got the news and was utterly heartbroken. She begged and pleaded with the higher powers to save her baby.
Then suddenly, an Angel showed up casting a light around her and her growing belly.
The Angel said "He won't be like any other child, he will be special. If you hold out hope until the very end, he will beat this spell cast upon him. He will show that wizard the true nature of a mother's love. And he will be perfect in his own way."
And she vanished.
The new young Prince was born so tiny people doubted he would survive, but the young Princess just smiled and watched him grow.
The younger Prince was visited by many medicine men and all gave doubtful news. But the young Princess just smiled and did what needed to be done for her young Prince's health.
And when the two Princes lost their father .... a Knight came along and swept them all off their feet. They became the best family for each other. And the young Prince thrived in ways no one thought he would, but his hopeful family.
And on the young Prince's 13th anniversary of his birth, he stood up and shouted the joys of breaking through the doubt and shining bright as the boy he was. The Boy Who Lived.
