Welcome to my blog - PLEASE take a moment to check out the pages above. There is a nice general INTRO for ICLW'ers up there.... It's better than I can do right now. I will give you a few facts.
* Hi - my name is Annissa .... I'm 35 ...
* I suffer from secondary infertility - even though I'm done having kids, you don't stop suffering. It effects you forever ....
*I had 14 miscarriages through my journey .... it hasn't been easy....
* I have 4 kids, all boys .... Calahan is 16, Noah is 10, Nathan 5, and Kaedyn who is 3
* All the kids have their own medical issues .... but Noah and Nathan have more distinct issues.
* Noah was born 1lb 12oz - he was born with Mosaic Trisomy 16 ... a very rare genetic disorder - I was told he wouldn't live - but he's a survivor and he is 10 years old. To read more of his story .... you can read it here on Noah's story page, and also here where Noah's Story Continues and Nathan's story starts.....
* Nathan was born 3lbs 4oz and was born with a "cyst" in his brain called a Dandy Walker Variant ... a two vessel cord .... and we now know he has Russell Silver Syndrome - a type of primordial dwarfism... the "cyst" is actually a part of his cerebellum missing, the vermis is completely gone. He also has another brain malformation where the front of his brain looks like "a bunch of grapes" .... in addition to that he has hypothyroidism .... Growth Hormone deficiency and is on Growth Hormone therapy .... and he has a cleft palate, among a lot of other things. You can read his story where Noah's story continues..... Nathan's Story.... I am working on a new update page for both of them, but it's still a work in progress at this point....
* I love writing, photography and allowing myself to escape into books...
* My husband has been suffering from some strange illness - he has bilateral leg weakness ... meaning he can walk for short distances with a walker - but he falls a lot with the walker - so anything of any distance he has to be in his wheelchair...
There are lots of informational things for you to understand what we've been through as a family. There is an intro up there and the link My Journey to Children talks - not only about my kids, but also about the 14 miscarriages that I've had... including a few of their stories. There is also a little more informative story on Noah and Nathan .... and I'm working on updating a new page for them.
We just started a facebook page for Noah and Nathan ... please feel free to like it. We literally just started it a few days ago. Click on the Facebook icon to check it out or go to ...
https://www.facebook.com/myuniqueflowers
I'm trying to bring awareness for my boys rare disorders. They each have separate issues ... it's not easy at the moment. We have a super busy weeks. Nathan has an appointment we've been looking forward to for MONTHS - to help him (hopefully) get a device to help him communicate with us.
Then later this week, on Friday - we are checking into the hospital because Nathan has surgery to repair his cleft palate. I'm DREADING it...... dreading dreading dreading.... I'm going to need a lot of support this week and I hope and pray we get it it.. Prayers for Nathan are ALWAYS appreciated.
If you are curious of what my kids have, in the My Journey for Kids page - there is a section that has a pretty good list of things we deal with.
Anyway .... I'm needing to go to bed - it's 10:30 and I have a busy busy day tomorrow. I hope you get some time to check out my blog and I hope you find some laughs, and maybe some inspiration :)
OVER AT My Unique Flowers .... I'm posting a series of blogs from our AMAZING day at Corey's Day on the Farm which is an event put on for kids who have medical issues. It's an AMAZING day and I took a ton of pictures!!! Been working on that :)
