Showing posts with label Mosaic Trisomy 16. Show all posts
Showing posts with label Mosaic Trisomy 16. Show all posts

Friday, March 13, 2015

Happy FRIDAY March 13th in Review!

HAPPY FRIDAY THE 13th!!!  Stop hiding.  Nothing bad is going to happen unless you believe it.
Okay he's kinda scary looking... muahahahhahaha....

Truth is....

This is how I woke up.  STILL running a low grade fever and boy did I feel it today.  I know that to most people 99.1 is like - nothing.  But my NORMAL temp is 97.6 instead of 98.6.  So a temp of 99.1 is like a temp of 100.1 for me.

I suffered today with being hot and cold and hot and cold ... ended up with our huge thick comforter on the bed, and the fan on in the window.  Yep.

Speaking of window... and weather.....

I don't think it's going to happen ....  LOL


So Kaedyn was digging through some of my stuff today and....

He found this.....  it's a coin I used to carry with me always.  The penny is Kaedyn's doing, he thought I should take a picture of that too... LOL....

So I spent most of the morning just....  lost.  Hurt so much, so tired - like dog tired ... like if I closed my eyes for a moment I could sleep for a year.  My body is so worn down from fighting all this stuff at once, my immune system is totally shot.  It's just hard.  But I'm trying really hard right now to keep an eye on my health and to be more proactive with everything.  I want to get better, I want to stop being basically bed bound.  :(    I don't want the pain to win.  So anyway ....  after I finally got some energy, I started to make some more Trisomy Awareness Graphics....



This one has a white border that doesn't show .. ha ha ...



So this was awhile back ....  a couple days ago I was 563 after getting a few pets including the Black Tabby (FINALLY!) and the Spectral Tiger Cub (Whaaa! Trading Card Game pet! - I got it off the AH) .... 131 pets at level 25!!  60% of my pets are Blues (Rare) ....


So today - after getting a few new pets this week, I am up to 570 unique pets - only 30 more to go to get my 600 achievement.  136 lvl 25 pets!  Go me!  65% Rares...  Woot!


Here are the 7 new pets I got this week.

But yeah ....  I'm so sick of being sick.


Kaedyn curled up with me last night again (with Daddy already snoring away) ...  and so I turned on the same episode of Guys Grocery Games we were 7 minutes into last night when he fell asleep.  He lasted a whole 8 minutes!!!  So we've gotten a total of 15 minutes into the show!  Ha!  Oye....


Met my water goal for today!  Yip!!



Oh and my Mom posted this today and made me cry.  She doesn't normally tag me in anything except maybe a recipe here and there .... or something about/for the kids ... etc ....   she is not the huggy kissy clingy type of woman, but I know she loves me to death, even if it's not said every time we talk or see each other.  But she tagged me in this today and it literally made me cry.



Oh yeah and .....




Wednesday, March 11, 2015

March 11 in Review



It was a long night, and a long day.  It was stressful and exhausting.  Cal woke me up in the middle of he night, there were other things that woke me up - like pain.  DB's snoring ....  lol...  various stuff. I just didn't sleep well.  Woke up and Little Dude came and hung out with me for awhile because there wasn't any internet .... this is what he does, badgers me until he has internet again.  Oh and plays on the DS ....


This little Firecracker came to visit....  she was cracking me up all day.  Here she was standing on the edge of the boxspring (sticks out a little) and then falling on the bed.  She'd give me that dead serious look, fall down ... and bust up laughing.  It was HILARIOUS ....


Here she is devouring a sausage wrapped in a pancake (corndog looking) thing....
 She got to the point where she was "eating" the stick.   So I pulled it out and she put it back in and tried to eat it around the stick...  LOL

Nathan checking out Mady and her kittens (Steve & Jypsy)

So DB got a job interview at our favorite local restaurant.... It was called a "working interview" ...  he was supposed to "dress appropriately"  ... so he got all dressed up in his chef garb and went on down there.  He came home and told me he had to go back tomorrow and have his actually working interview where he cooked and such.  But he said he had a really good feeling about it.  So YAY!!



I made another graphic for Trisomy Awareness today ....  with Noah as my star :)


I just spent a lot of time with Clairah today.  She kept coming in my room to see me and even crawled up to cuddle with me.  Without her mom!!  That's a huge step!  Had to get proof!!

When Claire is here, usually it's a lot of following Mommy where ever she goes.  One - she misses Shila a ton, you can tell.  She doesn't want to leave and she cries when Shi tells her it's time to go home (to her Dad's house).  So Clairah has a lot of major major separation anxiety.  She's literally up Shila's ass 99% of the time she's here.  Today, though, she showed some HUGE improvement.   She was walking around without Shi being in her sight 100% of the time.  She was coming in and seeing and playing with me a lot.  She wasn't crying or sliding into a panic if Shila wasn't in her sight.  So yeah, it was a good day.  There was TONS of little girl laughter in my home, and I love that.

She even brought me a Daffodil.  Later her and Mommy were throwing the petals at each other.  I took a video but I haven't loaded it yet.  

I (Nonna) gave little Miss a Swiss Cake Roll and it was funny.  She kept sticking her finger in it and licking it off and then she got the bright idea to shove it all in Mommy's mouth... LOL .... and THEN decided Mommy needed to lick her fingers clean too....  HA HA HA ....

Mommy gave her some gummy candy too.  LOL... she wasn't a huge fan of how stretchy it could be.

Oh and lets not forget the crackers she dumped all over my bed - ha ha ha ha

And the Selfies she took (she was watching herself on the phone while I clicked the button to take the picture) ... with Mommy shoving crackers in her face.  LOLOLOL

Not to mention her wanting to "color" on my phone.  Here are her Masterpieces ...

The ones below are with a Kaleidoscope drawing app


They had a butterfly setting on it too ...


I saw this today and thought - huh that's me!!  I love going in cemeteries and finding art on gravestones and pretty stones.... it's awesome.  So I thought... yep... that's me.

I saw this, and got jealous...  I wanna live there....

Made a feed bag tonight......

And I did this little thing on Facebook ... LOLOLOL.....

Oh and I didn't do so well on my water today.


Tuesday, February 1, 2011

9 Years Ago.... I held my breath....

9 years ago.........  I gave birth ....... via emergency c-section ....  to a ONE POUND TWELVE OUNCE tiny miracle.
9 years ago...... I got the answer, finally, that he wouldn't die before he could even take his first breath.....
9 years ago ......... I was blessed that he survived his first couple days....
9 years ago.......... I realized, that I actually have, got to, get to ... touch a miracle.
9 years ago, I fought to do Kangaroo Care as soon as I possibly could....
9 years ago..... I watched a child who clinically was suppose to die....... fight to live.......
9 years ago... I got 2 thumbs up.......... After just a little while, he was labeled a "Feeder Grower" and he just needed to gain weight ....
9 years ago......... I spent most of my time, in a small space, away from my family...
9 years ago ..... my miracle grew and proved all the nay-sayers wrong......
9 years ago, I witnessed something that I was told wouldn't happen..... my miracle ....... came home!

So ....  this...... is to 9 years!!
(2 months)
(3 Months)
(4 Months)
(5 Months)
(6 Months)
(7 Months)
(8 Months)
(9 Months)
(10 Months)
(11 Months)

Then he turned ONE YEAR
2 Years
3 Years
4 Years
5 Years
6 Years
7 Years
8 Years

And now............. NOW.......


9 Years ago ......... I held my breath.... and now, I am to busy laughing!!!

That's pretty good for a little miracle who we were told....... WASN'T SUPPOSE TO LIVE.......