Once upon a time, I got pregnant. I had already suffered five miscarriages, so I wasn't oblivious in my thinking that nothing bad could happen, but I never expected what I experienced. I was so excited, I had wanted another baby for so long and had fought hard for one. But it was apparent, early on ... that things just weren't .... normal ...
Soon we found out that the baby I carried had a rare genetic disorder called MOSAIC TRISOMY 16.
I was told, "he'll die in utero, if he doesn't he'll die shortly after birth.... and if by some miracle he comes home, he'll be so mentally and physically delayed, it won't be worth it."
Imagine how heartbreaking that was. Especially hearing your child would die. No doubts about it. That doctor sat there and gave the baby I fought for a death sentence.
He was born alive, all ONE POUND TWELVE POINT TWO OUNCES of him.
There was barely anything to him.
He didn't die.... infact, he started to breath on his own after only 40 hours and doctors would stop and wonder why this tiny baby wasn't on a vent. But he beat all the odds he was given. Sure, he had medical issues going on... he's been hospitalized. He almost died in 2007. ALMOST. He has grown and he has thrived, he learns at his own rate and he is amazing.
Today......... he turns ELEVEN!
For Noah's birthday he wanted to hang out in his PJ's all day and have cake and Chinese food ... and open gifts. :)
So that's what we did. We got Chinese for lunch, and he got to open his gifts. He got some World of Warcraft Legos, a book, a movie, WOW subscription .... and cake!
We celebrate his life EVERY YEAR! So little is known about MT16 and we never know what could happen. My miracle is 11 today ....
HAPPY BIRTHDAY NOAH!!!