I started a new blog last night... MY UNIQUE FLOWERS
Here is the first Entry......
In 2004 I attended a genetics conference in San Antonio TX .. and I was in a lecture where some kids got up, well, not kids per-say... but some adults and young adults with "Special Needs" got up to talk...
One point they got across was, they don't like the terms "Special Needs" and "Handicap" ... they are just who they are... and if you are going to categorize them... refer to them as "Special Flowers" ... or something like that... because they are no less beautiful then everyone else, they are just different...
That made me think... about my own child...... Children now...
And how I have chosen to raise them... despite the "special needs" that they have..
Yes....... I am the mother of Special Needs Children.... each in their own way... I don't love them any less because they are not "perfect" ... in fact... maybe I love them more :)
Please add me to your favorites as I introduce you to my children, discuss their progress, concerns, illnesses, worries, and general life. After all... they are my Unique Flowers... like snow flakes... no two are the same.. each special in their own way!
I just decided I needed someplace where I could really get out my feelings, concerns, updates, fears, etc on them....
What a great idea!
ReplyDeleteYou know, when my first was diagnosed, I told myself, "I can handle this, thank GOD Little Guy is perfect".
Silly me. My only excuse is that I was young and stupid.
My Little Guy IS perfect. I just had to open my eyes and readjust MY definition of perfect! :-)
I've just read through your entire blog! I will add you to my links list as well. You sure have a lot going on with your kiddos.
ReplyDeleteI agree about not calling them handicaps or some of the other phrases. One of my favorites with Izzak is telling people he has learning differences instead of disabilities although I sometimes get weird looks and have to explain it. Which is hard he has so many. My Joshua also has sever ADHD and takes meds otherwise life is insane and we are constantly on gaurd for both his moods and actions that can be dangerous for him and the rest of us, etc. I'm sure you understand. Kenzie has so many issues but they have never come down with an exact diagnosis for her just multiple things that I personally beleive lead to one main but can't seem to find the right person to figure that out. Hopefull someday..... Madison isn't too bad she has bladder issues and is barely potty trained at 7 but mostly because she can't feel it when she has to go, it's called a neurogenic bladder and a couple of other minor issues. We've been through the ringer with things over the years with these kids! Not to mention my own problems.
I hope you guys are starting to feel better and little Nathan starts eating better again so he can gain the weight. I will be praying for your family.
Hi Annissa, I'm here reading your blog. You and your family will always be in my prayers. Take care and I'll see you soon.
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