It was obvious to me, even if he didn't have "classic autism" he was somewhere on the spectrum.
It was OBVIOUS .......
And we've spent time just hoping we were wrong........... but knowing, deep deep down .... that it was right.... it fit....
A couple days ago, we were at the DR and he laid down on his back and just started to spin around in circles .....
He melts down, he needs to be wrapped up in his blanket or my blanket and held real tight and he'll calm down, he folds over when he's uncomfortable....... like this ...
Today ... it became official... he is on the low end of the spectrum but he does have PDD .... Nathan has officially been diagnosed with Autism and ......... even though it was expected, it crushed my heart....
In addition to that, they are questioning if he has Dandy Walker or if he might have another disorder of the cerebellum called Joubert Syndrome .... we found out today that he's missing a piece of his cerebellum called the Vermis (which is Latin for "worm") .... I knew he had a cyst in his brain that would always be there, in his cerebellum but no one ever told me there was a piece missing..... maybe they didn't explain that to me, maybe they didn't know until this last MRI..... but it was a shock to me today .....
You just don't know how it feels to hear YOUR CHILD IS MISSING A PIECE OF HIS BRAIN........ unless it's your child and you are hearing this.....
He has the PDD diagnosis and they feel it's related to one or more of his medical issues. Regardless.... he will be able to receive more services at school ... which will be wonderful for him. I can't complain.
Now ... we just have to figure out which diagnosis is the true one, and what that means for him....
Good luck to Nathan and your family.
ReplyDeleteLisaDay