Taking Nathan into the ER

You all know he has that dandy walker cyst in his brain

I noticed on Sunday that he has a flattening on the right side of his head...
Today during his OT - I noticed that his ears are off center a lot (looks like to me anyway) ...
Then it dawned on me he's been way more fussy
and then talking to my friend Mel, I realized that his soft spot is firmer then "normal" for him...
He hasn't been sleeping real well, he's tired - but will wake up - fussy and fall back to sleep - or start fussing bad... I have been spending more time holding, bouncing and trying to calm him down the last few days...

I gave him some Tylenol at about 12:30pm and he fell to sleep shortly after - was no longer fussing...

So... I had called his Nurse who comes weekly and she called his PED .. who is on vacation for the next 2 weeks... so a nurse called me back - said she was going to try to get ahold of the PED on call ... I told her that I didn't have my van until later today (Dennis took it to work) but I text him and told him to call me ASAP... and the nurse called back... and she just called back, and I told her that I noticed his soft spot really isn't sunkin in like it usually is... so we're going into the ER.

Better safe then sorry right?

And this is only one thing in addition to countless others - creating a horrible day for me...