Tuesday, January 10, 2017

It was a loooooooong night ...er morning?



Today started with .... well, last night.  When I say last night, I mean O'dark-thirty.  Just kidding.  About 1:30am-2am Nathan's feed finished.  This is usually my bedtime, cuz Dennis and I aren't waking up for Nathan's pump beeping (when it's done or blocked)...  so I stay up until it's done.  I stay up because Dennis has school all day during the week, and all the kids (but Noah, who homeschools)

Anyway ...  Nathan woke up shortly after I disconnected his feeding tube and closed off his Mic-Key button.  He was breathing rather loudly, and his nose was congested, you could tell.   He didn't feel warm (feverish) but you could tell he wasn't feeling well and once I got a good look at him, his eyes were puffy too.  So I ended up rummaging through my medical drawers.  Found my small booger squisher (the nasal bulb thing you get for newborns) ... and some nasal saline spray, my allergy eye drops, and the Vicks to slather on his chest and neck, and Albuterol inhaler with the pediatric spacer.  I attacked him with all of them, much to his dismay.  But he didn't fight me too bad on it all.  He was breathing better after. But he was thoroughly awake.  I stayed up as long as I could with Nathan, and at some point Kaedyn woke up...  so they were both up for awhile.  When I woke up to help get the boys ready for school, Kaedyn was sleeping and Nathan was still awake.

There was some talk of if we should keep them home - or send them to school.  School is such a struggle with Nathan ANYWAY - we didn't want to send him the message that staying up all night means you get to stay home.  So we figured we'd try out seeing out things went and send them both off to school.  Kaedyn got some sleep - we don't know HOW much but he at least got sleep.  Nathan on the other hand got ... 6 hours, but at that point was up for about 8 hours and was going to do 6 1/2 hours of school.  (so awake 14 1/2 hours at the time Daddy picks him up from school when he's done with college.)  ...  that's kinda a lot when it's not your normal for a kid who is Autistic.

Well - when DB took the boys in, he dropped Cal off at the college so he could get to his 9am class on time, and Nathan was sleeping in his carseat.  So he called me and we discussed what to do, again. Even though as parents, even though it's not ideal - we wanted to keep him home because he needs sleep.  However, since Nathan is a "special needs" child and has already missed a lot of school - he is at the point of needing a "doctors note" when he stays home from school for it to be excused.  Same for Kaedyn (because a lot of time, when Nathan has appointments - Kaedyn has to go with us because we either can't get him to school because we're not there or can't pick him up because we're not there.)  So DB decided he would go talk to Nate's teacher.  So they got there and he went and talked with Nathan's Inclusion Room teacher Mrs. R.  We looove Mrs. R.  She told him that she'd let Nathan take a nap if he decided to, and not to worry.  So he called me back and relayed the message.

I slept this morning.  I wanted to get some stuff done, I have a new character rolling around in my head who needs a story.  I have a book I need to go back in and add some book fluff, some more details, connect some lines I need to connect, etc and so on.  And a book to read.  Well, so ... I slept instead, somewhat.  I folded clothes, got them put away, and slept.  I have a shelf I need to go through and re-organizing.  But I slept for a good chunk of it.

But I got to eat today!  Yay for that!

Oh - and this is what I got to deal with ....




So.. after DB was done with his classes, and him and Cal went to go pick up the Littles at school... he comes home and tells me the following.

Mrs. R says that Nathan had a very bad day and he was a very naughty boy today.  He was very disagreeable and he got in trouble - LOL - so the Principal took his hat (his winter dinosaur hat) away from him and got it back at the end of school because they know much he loves his hat.

Now - I started laughing and I couldn't stop when he told me this.

Only Nathan.  Only .... Nathan....

No other child could you take away their winter hat as a punishment!  I mean, you take Kaedyn's hat away from him and he's like.... soooooo, I don't care.  You take away any other child's hat, they are all "guess my head will be cold then!" and not care.  But Nathan, only Nathan will throw a fit if you take away his dino hat and it actually upset him to the point of changing behavior.  Not even kidding.

This is the hat in question ^^^^

Okay so today has been sorta rough - foot is hurting, the un-injured foot hurts, the upper body hurts.  I just ....... H.U.R.T. and that's all there is to it.

That's all I'm gonna say about that cuz I just .... don't want to talk about it.

Okay.... so the family gets home and chaos ensues, because it always does.  Before I knew it, I was getting meds ready and bedtime done.

Nathan got his bath tonight and I told Bubba, "If you want a bath tonight you need it before six."  LOLOL .. he says "I'm okay being bath-less."

(rolling eyes) ... going to end up calling that kid "Pigpen" let me tell you.

I was talking to my sister Heather most of the afternoon. She gave me the dates she's going to be here over the summer.  I cannot WAIT.  Not even kidding, I can't wait.  She's going to be here for her birthday, my birthday and the 4th of July!  So we're going to celebrate her birthday, my birthday and DB's birthday, which are all in June.  I know we need to take a trip to the Zoo (Point Defiance) while she is here this time. I think we need to go to the Glass Museum this time.  I promised her we'd take her to Menresa Castle which is haunted.  Also wanted to take her to the Rose Red House aka Thornwood Castle until I read this on their website; "Visits: We regret that time demands and our neighborhood setting do not permit us to show the Castle on a walk-up basis. The Castle is a private residence and located in a private neighborhood. It can be seen by a guest only when coming for overnight lodging or an event." It's in Tacoma which isn't far away at all, and I'd say - hey lets just stay there for a night, but it's $300 at the least.  Oye...  but it's also supposed to be haunted.  I am sure we'll have to do a few things again, like more of Pike's Place Market, and this time find the Gum Wall.  We need to take her to the U.S.S. Turner Joy. And also to the two free Naval Museums here. I don't remember if we made it to the Bug Museum.  I don't think we did.  Need to take her to The Brothers Greenhouse that has a "Hobbit House" set up.  We are probably going to go back up to Forks and La Push to take some more time there.  But that's just the thoughts for now...

I've been thinking about my BFF J all day, hoping she's getting sleep right now.  I know that she is going to have a lot of mixed days, a lot of bad days with some good days peppered in, but I worry about her a lot.

I got to end my day talking to my favorite little girl!!  I mean seriously - this little girl stole my heart from day found out she was hiding in her Mommy's belly!  She waved to me, jabbered at me - she had to talk louder than her Momma when Momma was talking to me cuz Elly must be heard, I got to see her run, we were sticking our tongues out at each other, and when she saw me she was all smiles!!  She hung up on me and I guess she got really mad when I didn't call back because Poppy (DB) was going to sleep at that point.  I miss her so much!  (I miss all of them) ...

She has grown up so much in the last year....

I promised I'd call her tomorrow when her Bubba is here (home from school) to talk to her too.

The weather today was nice.  There was a nice blustery breeze coming though the window, I love it.  DB calls it the Pneumonia Hole ... LOL ...  there was supposed to be a chance of snow last night and/or this morning, but I knew we probably wouldn't see anything and didn't really.  However school was delayed 2 hours for one local school district today (they bus Nathan and Kaedyn to their school in the morning) .. so they called to say they wouldn't be busing the boys .. we assume because there was icy roads? ...  but so DB drove them all the way into school today.

But now the boys are sleeping ..... whew - and they better sleep through the night.


That is all for today.

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